Rare Together

We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging together with the stakeholders in our world.

Welcome to PNH Support!

We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging together with the stakeholders in our world.

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What Is Paroxysmal Nocturnal Haemoglobinuria (PNH)?

PNH is a rare blood disease where PNH affected blood cells are attacked by the complement part of the body’s immune system.

About Us

PNH Support is a Charitable Incorporated Organisation (CIO) registered with the Charities Commission (number 1161518).

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Resources

Our Resources area has lots of information available and there is no need to register for an account if you don't want to.

Make A Donation

If you would like to make a donation to PNH Support please visit our donation page which can be found here:

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Next PNH Support Event

This is a countdown to our next PNH Support event

Subscribe to stay up to date with future events.

Contact Us

Email

We will reply as soon as possible

Phone

Mon - Fri 09:00 - 18:00

Fancy a Zoom Chat?

Book a PNH support chat now.

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About

We are a community of people living with PNH (and their family members) in England, Wales and Northern Ireland supporting one other, sharing our experiences and engaging together with the stakeholders in our world.

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